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Emotional detachment, in my mind, is response to misunderstanding on part of family and friends. In particular; I thought I was rich in friends but with MS diagnosis came sharp reduction in income. With that; all my so called friends made like "smoke in the wind" and simply dissappeared. No more calls, emails, visits or "lets go away for weekend".
You'd think they all figured MS was a contagious disease. How wrong they all are. Any thoughts on this?
I have had friends leave and new friends emerge. My MS support group friends are wonderful. I appreciate having them.
@A MyMSTeam Member I have used "The Spoon Story" many times to help explain why I don't always have the energy to spend time with people. I have had friends simply say "Save a couple of spoons for me this weekend" and I LOVE that they remember the relevance of the story.
Yeah that's a tough one because you never know what they are thinking. If I were you I would talk the one that I am closest to. I would try to explain to him as best as I could what is going on with me.
I posted the following link for you to read: www.butyoudontlooksick.com/wpress/articles/writ...... You can google if it if you like. It is called "The Spoon Story." One will actually come up for MS. I would use this to explain your disease to your friend and I think he/she will have a better understanding of what you go through on a daily basis. Good Luck to you.
Maybe your friends don't know how to talk to you. Maybe they think you are too ill to go out. I would contact them and tell them you miss their company and you are still able to do certain things with them. Put your friends at ease.
I agree with everything said here. It takes awhile to become "ok" with others reactions to this disease.
I will add though, the isolation didforce me time to better get to know myself. Which hasn't been a bad thing for me, I kinda enjoy my own company now, lol.
My animals also bring me great joy @Cooleen. Their love & loyalty is unlike any other. My dog has in many ways helped me cope & truly keeps me going.
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