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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Milford, PA

I have been on Copaxone for 14yrs, I admit I missed taking the shot, some days turned into wks of no injection, mainly because I really didn't think I had MS,I was in denial plus hated taking a shot, clinical showed brain lesions and high IGG levels and physical was only that at times I couldn't stand on one foot. Well a few weeks ago half my body went numb from my toe to my neck and I also have no sensation on that side either, went to hospital and was admitted for 7 days to get injections of… read more

March 23, 2014 (edited)
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A MyMSTeam Member

Bumpyjo, in your research chk out the pharmacies that have results on 'pills'. Just found out that aubagio (the one I was instructed to take...I never ?'d why or how come)(a pill for relapsing MS, which I do not have) is quite low on scale for doing it's job! Tecfidera has a quite high mark....as a couple of others. It's your 'Bat', chk out the side effects and weigh out the possible pros and cons. Finding a Doc who U can trust,who is a real person, who listens, and looks at U when talking to U AND when U talk!! ARE A MUST!

March 23, 2014
A MyMSTeam Member

I am on Tecfidera which is the latest oral that has been approved. I have had minimal side effects. Prior meds included Copaxone, Rebif and Tysabri. All were O.K. The key is to make sure that you don't get taken off one without being placed on another. I was taken off of Copaxone due to a site infection by a prior doctor who did not put me on anything else. 4 months later I had a exasperation and ended up in a nursing home for 3 months. I had full functions (walking too) prior to the incident and now I am wheelchair bound and only able to use my left arm.

March 26, 2014
A MyMSTeam Member

I am taking glenya now that it available in Australia. I have had no reaction to this drug. I don't know what it will do to my kidney. I was using Rebif when I was isn't diagnosed. I do feel heat at times but I was not aware that it was because of the MS medication that I'm taking.

October 11, 2015
A MyMSTeam Member

OMG, I'm so sorry. My sister is having the same problem. She is having surgery this month to remove her kidney and she too has MS. I do not recommend the Aubigio pill. I had swelling of the tongue, hives, and I stopped breathing. My Dr. told me that more info. about how bad the pill is was being published.

March 24, 2014

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