Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Edmonton, AB
November 5, 2014
 · 
Be the first to react
A MyMSTeam Member

I am doing it without the meds...other than the ones for symptoms like Neurontin and Baclofen - I was on Betaseron for a while and it seemed to make me worse, I actually had more relapses when I took it. (at least I think I did) I have had solumedrol and the side effects of that are not worth it. If I just tough out a flare I am usually better in about 6 to 8 weeks... I know not everyone can do that and I don't know if it is even wise, but I am currently living in a country where I cannot get other meds. Like the oral drugs. I would have to pay for them -full price and that isn't possible. So I try to be careful exercise as much as I can, swimming or walking mostly, try to eat right, and hope for the best.

November 5, 2014
A MyMSTeam Member

I do take LDN (Low Dose Naltrexone) at bed but that is not one of the 'approved' MS meds by any means. Other than that it is all about diet, exercise, and attitude (ha - DEA - disease enforcement agency). Oh - lots of supplements too. I've been given the PPMS tag so I don't really have any viable DMD options anyway.

November 6, 2014
A MyMSTeam Member

Hi, I considered going without meds and asked my doctor and dis some research on my own. The consensus seems to be that since the DMD's are available, you should take them, even though you may need to try a few before you get it right. Best to you.

November 5, 2014
A MyMSTeam Member

I take two for symptoms and the rest I take vitamins and diet

November 13, 2014
A MyMSTeam Member

I'm not on meds either only symptomatic meds like GypsyFay. I do feel I'm progressing but very slowly.

November 12, 2014

Related Questions

View All
A MyMSTeam Member asked a question 💭
Ipswich, UK