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A MyMSTeam Member asked a question 💭
Columbia, TN

Because we are on the medications to slow down progression even the ones that say they cut down over 50% of relapses (gileyna for instance).

Does that mean we won't have any MS problems in the mean time?

Just curious to know what you guys think or have experienced over the years...

November 11, 2014
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Be the first to react
A MyMSTeam Member

There are no guarantees with any medicine. Each of us react in different ways. IT is called RR for a reason. When you have a flare up it can go back to your base line, but it can stop prior to the base line and you will stay that base line. Went to a Copaxone Information Meeting and this is the way they explained it. It is easier to understand with a show board. Wish I could explain it better.

November 13, 2014
A MyMSTeam Member

Hi Mandyrose...OH...I am also on LDN-- for symptoms..and Aubagio to stop progression. I have not had a new symptom in over 10 years...and no new leisions. I am just dealing with the residual from old flares and like you say--taking one day at a time.

November 12, 2014
A MyMSTeam Member

Hi,Gail. Everyone with MS is so different. I was on Avonex for ten years, then Tysabri for two. The last four yrs. I have been on LDN (low dose Naltrexone 4.5mg. I'm holding my own, but have progressed. I just take one day at a time.

November 11, 2014
A MyMSTeam Member

I absolutely agree! I am on LDN because I've read up on it, because I am no longer on the traditional medications. My liver enzymes went dangerously high on Avonex. The other meds I was on caused severe reactions. Tysabri for two yrs, no problem, but my neurologist took me off. Not doing as well as I'd like, but ok.

November 13, 2014
A MyMSTeam Member

For anyone interested in LDN: Low Dose Naltrexone 4.5mg- Info @ Amazon Up the Creek With a Paddle. You need a compounding pharmacy. My primary care doctor prescribed it for me. :-)

November 12, 2014

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