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Dx almost 20 years ago, but fear I may actually have MS. Anyone else experience this??

January 21, 2015
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A MyMSTeam Member

I was diagnosed with FMS 20 years ago. Doctors never seemed interested in balance issue or other MS symptoms. Thankfully, my daughter pushed to get right diagnosis. Had Ms symptoms 18 years or longer.

January 22, 2015
A MyMSTeam Member

I was diagnosed with anxiety first, then it was fibromyalgia, then it was confirmed MS after 10 years of searching for the true diagnosis. MS symptoms 20 years and counting though. It is VERY common for MSers to be diagnosed with Fibro first.

January 21, 2015
A MyMSTeam Member

@A MyMSTeam Member I am in the same boat! I have been diagnosed with severe FMS, CFS/ME, myofascial pain, the list goes on and on.
I am concerned I have MS. A few of my doctors have said my symptoms are MS-like. My best friend's mom has MS as she said her mom was exactly the same as me before she was diagnosed.
My GP did an MRI of my head, which thankfully was normal, but that doesn't rule out MS.
My pain most of my life was traditional all over, achy pain associated with FMS. A couple years ago it changed to electric-shock like pain, numbness, tingling, weakness...& I developed more neuro symptoms. My GP isn't convinced so for now I take meds for my symptoms & try to cope.
Message me, we can chat anytime!

January 21, 2015
A MyMSTeam Member

No Dear but I have a friend who has Fibromyalgia and have taken care of an elderly lady who has it and there are a lot of the same symptoms, your doctor could do an MRI to find out for sure or order a spinal tap which is very scary but I've had 2 and made it so you can too I bet.Hope this might help some what. Hugs Brenda

January 21, 2015
A MyMSTeam Member

Thank you all for your responses. It means so much. I see my internist very soon and am going to ask him to prescribe tests for MS. Some of the newer symptoms that I'm experiencing are blurriness, double vision, extreme fatigue (can't believe I could be any more tired than before,) clumsiness while walking (walking into things, stumbling,) short term memory loss, among others. Thanks again. Hopefully, I'll get some answers. I will keep in touch!!

February 3, 2015

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