Hi all, i was diagnosed with SLE 2 years ago by labs, symptoms and large family history. I just had an MRI of the brain W/WO which showed lesions consistent with MS. Next off to the neurologist next month and possible different diagnosis. I am thinking it is not common to have both so if it is MS then Lupus was misdiagnosed. Anyone else have this happen?
No, they first said it could be either for me but after further testing an MRI and spinal tap they discovered mine was joyful M.S.!! I truly don't which is better to have my Aunt has Lupus very painful- it hits joints! Whatever you have DON'T give up and stay informed! 🙏❤️♥️
Awe, it can be a real nightmare sometimes. Another thing that can come into you getting or not getting a DX quickly is whether your neuro has had much to do with MS or not. My first neuro told me flat out “you have MS”, she said “i can’t DX you with MS right now as we have to rule other things out and do more tests but i’ve seen enough of it to know you have MS”. A week or so (can’t remember exactly) later while still in hospital recovering i had another episode. That could have ended up with me not getting dmd treatment (Tysabri) in a timely manner because the correct boxes were not ticked on whatever form although an experienced neuro new different. I was DX with highly aggresive RRMS so who knows what permanent damage would have been done had i not had a 2nd episode while still holed up recovering in the neuro department. I was given treatment pronto, again i can’t remember exactly how quickly but it was a week or two i’m sure.
I really hope you get things sorted asap! Hang in. 🤞
It's quite common to have more than one auto-immune disease. Hopefully tests will answer your questions soon.
I was diagnosed with Lupus at 17 and it affected my organs..mainly my kidneys and lungs. I was then diagnosed in my 30s with RA because I have issues with joints and my hands started deforming. At 48, after a few years with symptoms and many tests, then an MRI and lumbar puncture diagnosed with MS...I asked the neurologist if it was possible that it was MS all along. She said it's common to have more than 1 autoimmune disease. They effect different systems but they are basically treating the symptoms that are causing the biggest problems at the moment. Hope you get an answer...no matter how scary, a diagnoses has been a comfort to me to explain what's going on. So many drs couldn't find what was wrong. It was nice to be validated! And proper treatment for what is going on. Take care!! Hope you get answers!
Most DX of MS are a ruling out of a few other things then putting some other indicators together. There are a few of these diseases that MS mimics so it’s quite common for miss-DX of them all. Sometimes the indicators for MS are strong which makes it easier to DX and sometimes not, which is where the confusion comes in. Some people go months or even years without a DX so as silly as it sounds be happy your neuro is able to DX it so you can get started on the proper treatment. All these diseases are better found and treated as early as possible. Hope you get things sorted as quickly as poss! 👍