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A MyMSTeam Member asked a question 💭
East Stroudsburg, PA

Has anyone else here ever had an elevated SSEP? My neuro ordered labs and mine came back slightly elevated, never has before. He sent me to a Hematologist for more labs, 24 hour urine, X-rays and next a bone marrow biopsy. He's pretty certain it's due to the autoimmune issues I have, but is unable to rule out anything until all testing is completed. Ugh.

March 3, 2015
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A MyMSTeam Member

I ended up with hemolytic anemia and now ITP. I've been seeing a hematologist for 5 years now. Both are auto immune disorders. I had the bone marrow biopsy too. I didn't think it was too bad. They numb your whole hip so all you feel is pressure. The thought is worse than the event.

Good luck with your tests. I hope they end up negative.

March 5, 2015
A MyMSTeam Member

Had no problems afterwards.

March 5, 2015
A MyMSTeam Member

I had to be put to sleep for both LP and biopsy.

March 5, 2015
A MyMSTeam Member

Yes,I was sent to hematologist for more blood work and bone marrow biopsy . Every test came back negative. YEAH!!

March 5, 2015
A MyMSTeam Member

Hey guys! I know this post was from 3 years ago, but can I talk to one of you? All my blood levels are elevated and I am being sent to a Hematologist tomorrow to do further testing. I am terrified since my paternal Grandmother died from Leukemia. I just want to know what levels you had that were elevated if you remember...

May 16, 2018

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