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A MyMSTeam Member asked a question 💭
Brigantine, NJ

Anyone here with TMS? Google it if you never heard of it. Those of us with it are in a group of aggressive RRMS that is rare.

My lesions are huge and I hemorrhaged in to a couple. Left lots of damage.

Anyone else?

March 8, 2015
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A MyMSTeam Member

Did you both start off with TMS or was it regulator MS then TMS? Just wondering if TMS first did you have any occurrences after the initial attack?

May 20, 2017
A MyMSTeam Member

I ended up falling very ill on holiday in Majorca last summer. Horrendous headaches weakness to left side and left side of face dropped. I was sent to hospital and after an MRI was told I had a 5cm mass which they thought was a tumour. Drs then sent me to intensive care in Palma. Luckily I had a very good neurologist over there who after speaking to a consultant in the uk was told I had tumefactive Ms. Was the scariest time of my life but I felt lucky that it wasnt a tumour! I was airlifted back to England and spent 2 weeks in hospital. This was my worst relapse to date but I've recovered really well and in a strange way feel very lucky!
Anyway I hope you get some answers from your consultant.
I've been on tysabri since August last year and seems to be ok so far.
Lynsey x

June 28, 2015

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