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@A MyMSTeam Member - I am one of those success stories, having had HSCT in Moscow, Russia last July and couldn't be happier with my very well researched and informed decision to have this treatment done!! Like I'm sure you know, it is not a stem cell therapy. Virtually all of those are scams, as @coolliones has alluded to, and they most likely preying on MS sufferers for profit. 'No chemo, no cure' is the mantra here, no free lunch unfortunately. The chemo cocktail ( HSCT uses a chemo drug as well as another agent such as Rituximab) is what knocks out our immune system in order to get it to stop attacking the CNS in error . The Hematopioetic Stem Cell Transplant term is a bit of a misnomer. HSCT is actually a chemotherapy procedure that uses one's own stem cells to help in the recovery process. It is basically a 'reset' button for our faulty immune system, much like rebooting a faulty hard drive on a computer. I strongly advise you to join that closed Facebook group that @A MyMSTeam Member referred to above as there is an amazing amount of information on the site where you can research as much as you like on the subject. It is a private group so the general public cannot see what goes on in there in order to protect our privacy. When you open that link, you will press the 'Join Group' tab on the page. The admins will quickly accept you, they just make sure you are not a 'spammer' first. Once joined, press the 'Files' tab (on the right side of the page) where there is a ton of info as well as many blogs that HSCTers have kept before, during, and after the procedure. People's firsthand stories are very beneficial to read to fully understand what goes on during treatment. It is no walk in the park, BUT, across the board, there is an 80% success rate for the HSCT procedure. That's a chance I, personally, was willing to take with those odds of success!! Feel free to bounce any questions you may have about this treatment off me as I am quite passionate about it and have had the progression of my disease halted! Having some certainty for my future (which MS robs us of) is priceless, powerful, and I'm always looking to pay it forward and help those interested in helping themselves! Take good care and happy researching, Keryn.:)
I'm not personally but I have my company on it and follow whats going on. Like you Marina I have heard great success stories from stem cell therapy and youre right everyone is very non committal. I'M not wanting guarantees, I'dont care what I will be like in 20years time, I'm here now today and want to live life to the full.
@A MyMSTeam Member, good luck with your HSCT!! You got this!!!!!!!!!
I am still classified as secondary progressive, I can ambulate with a walker in the house although not very well. Not really improvements but seems to have slowed my progression significantly. It was part of the trial through Boston. Best of luck Girlfriend!
@A MyMSTeam Member yes I was part of a HSCT in Calgary only instead of taking your immune system to 0 they took me down to 5%. Then I received my pre harvested stem cells back. Shortly afterward, about 4 months I began to worsen again. It probably did slow my rate of progression somewhat. My EDSS score is 6-6.5 after 23 years. Not as bad as some, yet not improved.
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