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Like most of you, I know I've probably had MS for a very long time. But this current problem where it affects most of my body and interferes with life on a daily basis is new since last June. I wasn't diagnosed until Sept. I had a brain MRI and they "accidentally" got a few of my vertebae in there. Most were in the brain but one was on the C1/C2. I had another MRI about 3 weeks ago just of the spine and part of the one lesion on my C1 is still glowing. How can a lesion still be glowing after a… read more
6 months ago, my doctor informed me that the lesions in my brain have more than doubled for the first time in 10 years. And yes, they "glowed". He used the term " shiny new". And two weeks ago, although the MRI didn't show any new ones but the existing lesions are still" glowing". I asked my neurologist why and he said "it's complicated" and that I "wouldn't understand" (?) but it "is pretty normal and will subside eventually" I was curious because I didn't think that they used radioactive dyes in my testing. ... I'd be interested if anyone else has better information. (I'm actually smarter than my doc thinks!)
Me, it's been a year.
@A MyMSTeam Member do you have the same lesion still glowing or only new ones? Thanks for responding! How long have you been diagnosed with ms?
@A MyMSTeam Member yea, your dr should have explained it to you! If it's glowing (lesion looks bright) it means it is an active lesion or new. Don't worry, you're not radioactive. :) I guess I just wanted to know if it's unusual to have a lesion be active for a year. Thanks for your response!
Of he thought you wouldn't understand he should have explained it to you
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