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A MyMSTeam Member asked a question 💭
Concord, NC

Was wondering if anyone has ever experienced Nystagmus, or quick eye movements. This is new to me. I don't know if it's because I'm dizzy or that it's just a new symptom.

What's your experience? Is it slow moving? Side to side, up and down, or in circles? How long does it usually last?

Thanks for your response.

June 3, 2015
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Reactions
A MyMSTeam Member

Mine is up and down. Anxiety, stress, heat, looking up or down can trigger it to go faster. It also goes with my vertigo. I have it moving small all the time but it will get as fast as the only way I know to describe it is like the end of a projector going flip/flip/flip - then I'm on the ground in the fetal position crying. I've had it since October and its only getting worse. My MS doc and my neuro-ophthalmologist are trying new medications but haven't found the right combination yet. No new lesions and no inflammation - just progression of my 2 large lesions present - 1 currently on my brain stem. Out of all the symptoms MS has given me I will take them all with no problem if I could just have my eyes back. My eyes feel like they have ran a marathon every night at the end of the day. I hate not being able to see, not being able to drive. Taking forever to type things. Thank god for voice activate technology.

June 4, 2015
A MyMSTeam Member

Mine is side to side and it's a new thing.

June 4, 2015
A MyMSTeam Member

I developed this problem within the last year. When I’m tired at the end of the day is when it gets bad.

March 26, 2024
A MyMSTeam Member

I'm sorry you're having severe eye issues, @A MyMSTeam Member. Thank you all for your replies.

June 4, 2015

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A MyMSTeam Member asked a question 💭
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