Oh wow that's exciting. I'll have to ask my doc (ms specialist) about that when I see him next month. Thx! ☺️

My neurologist at Stanford hospital advised, there are no medicines available for my PPMS. I was somewhat relieved to hear this because I don't want to take any more pills (I am already on a thyroid med + vitamins, etc & my cousin who was diagnosed with RRMS at a younger age has complained about the drug side effects & cost. He advised me to use diet, exercise & other alternative healing modellities to find out what helps. Currently, I am using the 'Wahls Protocol' (book). My exercise has to come 1st thing in the morning. That is when I have the best energy. My diet is 60% fats (very good for the brain-avocado,olive oil, full fat coconut milk, ghee), 20% veggies, 10% meat-especially organ meat, wild salmon, 5% nuts,seeds, 5% seaweed. This diet has no gluten, no sugar (except berries), no dried fruit, no dairy. It is a tough one but I am motivated to get myself into 'nutritional ketosis' which is the goal of this high fat diet.

Ocrelizimab is new infusion med being tested for RRMS and PPMS should be available sometime next year take every six months Keeping fingers crossed!!

One of the most common symptoms with PPMS is poor walking, balance, and overall mobility. Ampyra is the only FDA approved drug that has proven to help improve walking and mobility in MS patients. In the USA Ampyra is covered by most insurance companies, though at different percentages depending on the insurance company.

No DMDs are available for progressive forms. Less inflammation in involved in progressive forms and the DMDs main purpose is to reduce inflammation.