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A MyMSTeam Member asked a question 💭
Sanger, TX

Ok went to neuro today. I've never had that one defining moment that says ms or any relapses since being diagnosed may 2014. Asked her if I really had rrms or ppms. She basically said if I classify you as progressive. I can't give you any meds. Do I really need to be taking anything? I've only had slow progression of symptoms.

November 2, 2015
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A MyMSTeam Member

The DMDS stave off relapses, but primary progressive ms doesn't come with relapses or inflammation. Relapses and some inflammation may occur with SPMS. I admit I have had new symptoms appear then disappear or sometimes not occur as often, but more relapse like without being a typical relapse as someone who has RRMS. Numbness for me lasts no where near how long it lasts for someone with RRMS. Before my neurologist got me on aubagio I started having sensitivity to touching frozen items, it stopped after I quit the aubagio. I know the aubagio neither caused that, nor did it stop it, so I see no purpose to continue aubagio. I read somewhere that ppms causes more issues with balance and walking than anything else because most of the lesions are on the spine in ppms. With regards to DMDS for progressives, I think doctors are either grasping at straws to help because they genuinely care or they are getting kickback from pushing drugs. Realistically there is no approved DMDs for ppms, although they may still help for spms.

November 2, 2015
A MyMSTeam Member

I go back for a follow up in a month. I don't think they honestly know how to treat us at this stage. I try a healthy diet as much as possible to slow things down. Getting more familiar in the kitchen!

November 2, 2015
A MyMSTeam Member

Check out this article from today how about a new treatment for secondary and primary progressive of course it's in trials . http://www.msnewschannel.com/2015/11/assessment...

November 9, 2015
A MyMSTeam Member

It's kind of the same for me. I'm just afraid to stop taking Copaxone, what if it's the reason that I am not even worse?

November 2, 2015
A MyMSTeam Member

Doctors can't get kickbacks from pharmaceutical companies. They can barely even take a pen from them anymore. It's not like the old days

November 6, 2015

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