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A MyMSTeam Member asked a question 💭
Perth, AU

Has any of you with MS done an in home oral steroid treatment ...please contact me I'm looking to speak with someone about this.

Thanks

November 7, 2015
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A MyMSTeam Member

@A MyMSTeam Member Yes I was on 100 mg for 5 days when I had my face drop. It worked in 3. They were tiny pills so took many of them to reach 100mg. I always thought the MRI was best for diagnosing but have heard people having trouble being diagnosed so they get a spinal tap and/or lumber bar test ? lumer bar not sure if that's the correct name but I think so

Have a good day! Cheers!! *Let us know what your neurologist says please

November 13, 2015
A MyMSTeam Member

Dianal ..so u took 100mg per day for 5 days of the oral tablets ? Yes I'm seeing a neurologist, and am seeing him again on the 19th. Nothing found on my mri and I will push for a spinal tap

November 11, 2015
A MyMSTeam Member

I have been on prednisone several times. The last time was 80mg/day for 30 days, then 60, 40, 20, 10 & 5 for two weeks each. I had very high energy, making sleeping difficult, my face got swollen, my eyesight was impacted and I ate everything I could for a while. They are tough, but reduce the inflammation.

November 10, 2015
A MyMSTeam Member

@A MyMSTeam Member I really can't remember the dose. The last one's that I was on was back in 2011. There were a a BUNCH of little pills like 25 or so in the morning and the same around dinner time. I did the 3 day once and 4 day also depending on why I was on it. No I didn't have anyone monitory me at home. I had no issues taking them

November 9, 2015
A MyMSTeam Member

I took intravenous steroids for 5 days last week but it has run it's course and is no longer working,

November 9, 2015

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