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I was very upset after reading these posts and unfortunately I was hurt and responded as such....it takes a lot to rile me but I was not in a good mood after that

November 27, 2015
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Answer Summary

Members rallied around a post about a claim that MS is not a medical condition, with the community firmly and emotionally affirming that MS is... Read more

Members rallied around a post about a claim that MS is not a medical condition, with the community firmly and emotionally affirming that MS is very real, describing it as an autoimmune disease that affects their daily lives in undeniable ways. Several members shared information about the controversial CCSVI procedure developed by Dr. Zamboni, noting mixed results and high costs, while one member recommended the National MS Society's free navigator and education programs as a trustworthy resource. A recurring theme was choosing positivity over negativity, with many encouraging each other to ignore misinformation and lean on the community for support.

A MyMSTeam Member

I don't usually respond to most idiotic things online,...I usually brush them off and give them the benefit of the doubt as not being informed.....I am sorry if I got anyone frazzled but I did calm down today....tomorrow is another day and things always seem better after a sleep......:)

November 28, 2015
A MyMSTeam Member

after more investigating, this man he has primary progressive and not a doctor....ccsvi...that is his platform.....
I have had numerous MRIs on my neck...the problem I have is in my head....haha....since I have no evidence of this ccsvi I guess I will go back to thinking I was insane ...that would mean that I have imagined all of this....and who do I see about my imagined symptoms.....if I had imagined these I would have picked different things for sure....no pain, no fatigue, no wobbling. perfect vision.....what was I thinking!....choosing MS!!!
I will be back to my normal in a little bit....I am going to be positive and hope for the best for this man....he seems mad at something, and its okay to be mad at MS but it isn't easy to come to terms with this diagnosis.....what would he rather have that would explain his issues.....

December 1, 2015
A MyMSTeam Member

That's why this site is so great. We're all traveling the same road and we can share and learn from each other. No matter how weird a symptom may seem you can usually find someone on here whose dealt with the same thing.

November 30, 2015
A MyMSTeam Member

I agree I was somewhat insulted myself!!! I like everyone who has MS knows it's not fake,inflated & in our heads nor did we ask for such a horrific disease. We just have to accept that ppl are misinformed,uneducated & lack the drive to get informed. Prayers because I understand this horrible MonSter!!!

November 29, 2015
A MyMSTeam Member

It is sad that there are people out there that likes to feed on other peoples emotions them are the ones that i want to walk in my shoes and see how it feels.

November 28, 2015

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