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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Restless Body Syndrome?

Restless Body Syndrome?

Hi all. I have been experiencing some all over itchiness which then turns into all over twitchiness/electrical shock feeling. Most prevalent when at rest/trying to sleep. Kept me up all night last night and it was PURE TORTURE! Best way to describe is all over restless leg feeling where you just want to stretch, point and flex your limbs to get rid of the twitch only to be rewarded with little electrical shocks.

I don't know if I can handle another sleepless night with these feelings… read more

posted January 12, 2016
A MyMSTeam Member

Thanks all. Note that I have yet to be diagnosed with MS. All I've been told so far is that I've had a clinically isolated syndrome. I think I'm going to look into an MS Center near me to see if they can help diagnose/rule out.

posted January 14, 2016
A MyMSTeam Member

I was prescribed Gabapentin for my twitches & it worked a treat. Like you I would have to keep fidgeting & ultimately get up for hours at a time til it stopped. Your MS nurse/neurologist will start you on a low dose & build it up until they find a level that works for you. It also worked on the neuropatholgical pain I got in my legs & my poor aching back

posted January 14, 2016

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