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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Salt Lake City, UT

I was diagnosed in Dec 2014 with pretty much my whole brain lighting up and some on my spine as well. I relapsed again In February and again in July 2015. I thought I was relapsing again in October 2015, MRI was negative, but disability score increased. New MS drug and PT and by the end of December 2015/January 2016 felt amazing. I got the stomach flu the beginning of February and two colds in February also and have just been having a fire storm of symptoms. Nothing is terrible, but I am… read more

March 24, 2016
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A MyMSTeam Member

Well I only have MRI's every six months but mine has been fairly stable as far as activity on the lesions. My ability to do thing's is on a steady slow decline and I accept that and I haven't had a really bad exacerbation in quite awhile. But the DMD I'm on now has been working quite well so it's hard to say. My first year the DMD I was on wasn't working and it was a steep slide downhill. So the real key is finding something that slows the downhill progression to a crawl or even stops it. I pray for that one every day. Your not over thinking it, you are in charge of this disease and only you knows how your body feels. So question everything and look for the answers because none of us are the same. No one is "predictable" or "normal" in this journey how it affects you is different than me so ask if your brain MRI isn't changing see if your spinal lesions are changing. Just know that we're here to support you no matter what and we do care what happens to you.

March 24, 2016
A MyMSTeam Member

They recommend every 6 months to a year.

March 25, 2016
A MyMSTeam Member

I was told by the nurse to let them know if I had any new symptoms that lasted over 24 hours, that can indicate a flare.

March 25, 2016
A MyMSTeam Member

@A MyMSTeam Member I just don't want to jump the gun when it is nothing. I definitely feel different, but I am still trying to figure out relapse vs symptoms vs something else. I was doing the same thing with my July relapse; it took dropping my little girl to finally say relapse. But then October I was positive it was a relapse and all was good on the MRI. I seem to want to wait for the big bolt of lightning to say yes relapse.

March 24, 2016
A MyMSTeam Member

My MRIs were done every 6 months thru diagnostic period, but now I won't see the doctor or have an MRI but once annually. I would assume that it would be likewise with RRMS patients with the exception for a flare. I was told a flare would present itself in new symptoms lasting at least 24 hours.old symptoms may return with a pseudo exacerbations. Am I correct, @A MyMSTeam Member?

March 24, 2016

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