So far I have no worsening of symptoms when I am in heat. I am still taking hot showers and in heated areas. As summer approaches and the temperatures heat up I want to be OUTSIDE! I have spent the past few days in the heat with no problems. My doctor continues to stress that I should stay away from heat, but I guess I don't understand the mechanics of it. Part of me wants to do what the good doctor says, and the other part wants to enjoy my warm summer days until (unless) I am experiences… read more
Heat won't make ms worse, but it could cause a pseudo exacerbation to occur, a temporary aggravation of your symptoms. Some have a heat intolerance, some are cold intolerance and some both. I myself fluctuate. Hot showers sometimes worsens temporarily weakness, but most of the time hot showers don't bother me. Sometimes it takes a combination of triggers...over tired, stress, illness, too much activity like an extra hour at work etc.. When I questioned my neurologist about whether working beyond my threshold would cause me more disability sooner, he said it would just cause me to lose more for that day., but not permanently. 2 of my kriptonites are dark and being half asleep. My balance is good until I can't see, dim the light and I'm lose sense balance. Upon first waking balance and strength are no where to be found. Spasticity takes over as I sleep too. I have to stretch before my feet hit the floor. Not sure if that's true for all MSers. Only you know what truly triggers your pseudo exacerbations. For the majority it's probably heat, but not all or at least not all the time.
I work out in the sun all summer long and I feel my MS sysmtom start to act up but i have ice packs and cold rags with my and once i cool down they go away i asked my neurologist if its worsening my MS and she said no just listen to your body it'll tell you when its time for a cool down and the same with winter...winter actually messes with my MS worse than summer its easier for me to cool down than to warm up....
I've never heard heat making Ms progress faster. My Neuro just suggests to avoid drastic temp changes. I too, love the heat. For me, it's not the heat, but the humidity that makes feel tired. You are in charge of your body, if you do what you enjoy with no interruptions from your MS, then I say you will be fine come the summer. If you notice something not right, then just scale back a little til you can do it without issues. what I mean is, if 4 hours being outside with no shade is making you tired or feel a little funny, then use a cooling vest or just be outside for 2 hours. Hope this helps
My MS loves warmer weather. I also suffer from nerve damage on my left side, chest, shoulder and arm. Cold weather makes that area hurt terribly. I am never pain-free but feel better during the summer.
I have both,heat makes makes me feel like I am a oven on the inside then everything falls apart can't walk ,my face looks like I had a stroke, but I still lived I crawled my way to my gargen to work,now I wake up with blindness does anyone have this