I went back to my primary doctor today -- a new lady since my old primary retired. She gave me a printout of what my Neurologist reported.
...there are several tiny scattered bilateral periventricular white matter high FLAIR signal abnormalities of uncertain significance that may represent early evidence of demyelinating disease."
My question to this MS group is......What does this mean??????
Could be MS but it could also be lupus or any other demyelinating condition. Most Neuro's order an MRI to see a baseline in order to diagnose your condition. Do you have a Neurologist? If not perhaps your insurance company or your GP can help you.
That doesn't say what lobe of the brain it occurs. Bilateral refers to both sides however. Assuming they mean hyperintense rather than hypointense (or dark). There are 4 lobes of the brain...frontal, occipital, temporal, and parietal. The paragraph containing the impression is the most important. Does it contain suggestions or just "possible" demyelination? If these are your first MRIs, they'll probably wait about 6 months to do more or when you are in possible flare which will be picked up by enhancement
My insurance covered my "wheely", and I love it too. I haven't tried using it out in public yet. I'm slowly working myself up to that. My family just doesn't get this MS stuff. I think they are confused about how much I sleep, my pain, using the cane/not using the cane. Now I have a "wheely", so they can scratch their heads over that too...lol.. It's exhausting trying to get them to understand. I had a job for one month, but I just could't do it. I know my husband is disappointed, and my sister said, "oh, you quit this job too?" I'm to the point that I'm tired of all the doctors appts. and tired of dealing with all of this when no one seems to understand. I have no idea how to make them understand either....Hell, sometimes I'm confused too....lol. Oh well. I'm just venting. Have a great day.
Good for you. That kind of security will help you feel more normal. It does for me. I was diagnosed with MS in 1994. Happily, I am very mobile but like you I have also taken some embarrassing tumbles. I live comfortably in our 2 story home. When I go out, I use my cane and when I go on longer ventures, I always use what I call my wheely which sounds like what you describe you're thinking about using. It's a walker with wheels and I love it. Thank goodness it has brakes.
I just called my dr. today. I'm checking into getting a wheeled walker. I'm so done with worrying about falling and embarrassing myself.