Hi everyone, I'm hoping you might be able to give me some advice.
Going to my first ms clinic app next week and wondered what medication you would recommend.
I have had 3 exasperation in last 3 years and last one started approx 3 months ago and still loads of symptoms..
Loretta Williams the virus is the jcv virus named after John Cunningham who discovered it. If u test positive for it u have a higher risk of developing the pml infection witch is a brain infection which can become fatal. U get tested for the antibodies if u decide to go on tysabri,if u have had the JC virus in the past the antibodies will be detected if your score is low the neurologist may still want u to go ahead with treatment as was in my case, the hospital do keep a close eye on you though xx
How do I contact shared solutions? I am new to this site
Shared Solutions web site.
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I like Tecfidera, it's a pill which makes it very easy to take. Most people myself included dont experience terrible side effects and any that are generally are short lived. Everyone is different however and not everyone does well with it but Ive been happy. Sadly though now I have to change cause I've had a big spinal relapse and will be starting Tysabri soon. However for the time I was on it prior to now it worked well for me in many ways.
You just have to decide what matters most to you. Can you take injections for example or is that a definite no no?? A lot goes in to make this decision but discuss it in depth with your neuro.
Remember though that MS drugs do not 100%reduce relapses nor do they treat symptoms so don't expect to feel better symptom wise once starting one. If you do you will he disappointed unnecessarily. But they are good at reducing relapses by about 48-68% (which is still darn good) and decreasing time to disability which is ultimately what we all want to achieve. Do some research before going to see your dr next, have a couple options in mind then see what your neuro says. Collectively then you both can come to a decision about what to try first. Hope that helps, good luck!
I also am on Tysabri as well. I was on avonnex for 18 years and my new neurologist said we need to change medications cause my body got used to it so she gave me a couple of different options. Talk with your neurologist and research what will work best for you. I highly recommend Tysabri.