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A MyMSTeam Member asked a question 💭
Rochester, NY

I have some days that any fabric bothers my skin. The only thing that seems to feel ok and not as painful is the thick fluffy chenille type blankets. I will lay down with that wrapped around me, even to ensure my skin doesn't even touch skin. Just wondering if anyone else deals with this and what you do? I can not even take showers because of the water hitting me.

January 24, 2017
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A MyMSTeam Member

I have this pain over my body too. Have for years. Try to get explain it to anyone that doesn't experience it themselves and they look at you looking like you're an alien. Seams in my clothes are a real problem. I like look for seamless whenever possible. I buy panties that have really flat elastic and I still have to watch wear them inside out. Because they have a hint of a overlap seam at the waistband. Don't get me started about the leg holes. This skin Pain, burning, tearing, (I feel like cold water is on me sometimes), etc. keeps you guesses my. Does anyone hav exaggerated pain after a procedure or surgery?

February 25, 2017
A MyMSTeam Member

My back is the worst. My husband touches my back of the night and I lose it. My skin get sore especially my toes

January 29, 2017
A MyMSTeam Member

Oh when I was first Dx. with Ms. every thing that touched My Skin really hurt. Now it is only My Blankets at Night that bothered Me before I found some Lighter ones.

January 24, 2017
A MyMSTeam Member

I am allergic to gabapentin, but yeah I end up just being nude most of the time. Pot has helped in the past but I now live in a state that hasn't made medical marijuana legal

January 24, 2017
A MyMSTeam Member

Only if I run out of Gabapentin (Neurontin)..........are you taking that?

January 24, 2017

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