After reading the posted answers it appears that people on this forum may not fully understand the difference between Remitting-Relapsing MS (RRMS) vs. Secondary Progressive MS (SPMS) vs.Primary Progress MS (PPMS).

PPMS is not the same a SPMS. In fact if you have been DX'd with RRMS you will never be DX'd with PPMS. Rather RRMS only progresses to SPMS and at that about 25% DX'd with RRMS never progress to SPMS. PPMS is diagnosed from the onset and you never had a Dx of RRMS nor will ever be DX'd with RRMS and or SPMS for that matter. Suggest you read the following thinks to better under all this.

RRMS http://www.nationalmssociety.org/What-is-MS/Typ...

SPMS http://www.nationalmssociety.org/What-is-MS/Typ...

PPMS http://www.nationalmssociety.org/What-is-MS/Typ...

I was diagnosed this past November 2016, but the neurologist thinks he can trace it back five years as well. Since my diagnosis I feel like I have progressed from a sometimes problem to an everyday problem. It's wild. The more I concentrate on every little thing, the more symptoms I seem to have. I just started the ocrelizumab infusions for PPMS - an Expanded Access Program (EAP) that I was accepted into here in Tucson. I've had the first two doses and only felt a little mentally sharper after. No change in the physical part.

I have progressed rapidly even with Meds which makes me think I've had it a lot longer than 5 years (that's when diagnosed)

Well I had minor RRMS for 35 years...menopause at age 55 RRMS changed to progressive. Drs all say no correlation. Ha...consulted 3 doctors. Now on tysabri...no progression. No side effects. I use a cane and only work part time. I am on disability...have had MS 40 years. It's my opinion...use a DMD.
R

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