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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Elkhorn, WI

Looking at the news today, a few politicians are reacting to the big pharmaceutical Marathon on the release of Muscular Dystrophy medication at $89000 per year when the same drug can be purchased in the UK for 1200-1600 per year. Where are those voices and stands for other conditions and the cost of treating them. Corporate profit and greed has gotten ridiculous. When they leverage insurance companies and drive premiums to race yet our government does not flex to gain the same bargaining… read more

February 13, 2017
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A MyMSTeam Member

It appears that some people on this forum may be totally unaware of the advocacy work being done by the National Multiple Sclerosis Society (NMSS) both at the Federal and State for issues impacting those with MS. I for one have been very involved since my DX in 2000 at both the State and Local level with the NMSS and have even spoken before congress. Politicians need to be held accountable by their constituents.Therefore rather than asking why the politicians in Washington aren't doing anything , put your voice to the many issues and become an "advocate for change" with the NMSS. http://www.nationalmssociety.org/Get-Involved/A....

February 14, 2017 (edited)
A MyMSTeam Member

I'm on 600mg Lyrica daily(max dose). allergic to neurontin and baclofen. My co-pay for 90 day supply jumped from $70 to $600+. My m.s. clinic just called my rx company to explain why i NEED lyrica. Hopefully they will drop me to tier 3 instead of tier 4. if that happens, my 90 day copay will be $140 instead of $600. i take about 12 meds, so stress is good part of the equation. Be well my friends

February 14, 2017
A MyMSTeam Member

I just opened my first prescription summary for Jan 2017 and total drug costs per month is 13,733.67! Without the "extra help" and having the DMD Betaseron on their low income plan-I could not get my drugs. This is only for prescriptions does not include the supplements, creams and oils I also depend on.

February 18, 2017
A MyMSTeam Member

I say we all need to coordinate a "MS Convoy/Caravan together" and go straight to Congress and/or MEDIA.
My Tysabri with Medicare Advantage Plan paid $150,000.00 + my Copays and partial "Indigent Status Assistance".

February 14, 2017
A MyMSTeam Member

If we waiting for current administration to help with this we be waiting a long time They care nothing about our situation SAD!! Wanting to get rid of AHC but nothing to replace it with

February 14, 2017

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A MyMSTeam Member asked a question 💭
Lebanon, TN