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A MyMSTeam Member asked a question 💭
Mesa border of Gilbert az

What do you think?

August 13, 2017
 · 
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A MyMSTeam Member

I know MS is different for everyone but I stopped my MS drug (interferon) years ago and am following terry wahls protocol and am doing great. My uveitis is under control, MS is stable. I do have bad days but not worth going on medication for me. The cost is ridiculous and the side effects were awful. I have brain and spinal lesions but I guess I am lucky so far. I feel so much better then I did at the beginning of diagnosis.

August 13, 2017
A MyMSTeam Member

Tried Tysabri for 6 months. I saw no results so I gave it up. The side effects listed were horrible. Anyway Im doing something else now: Every night I pray for a miracle or a fairy godmother....whichever wants to come first....Im quite flexible....Lol

August 13, 2017
A MyMSTeam Member

Hi. Sorry but I'm having difficulties downloading, once I have I'll respond!!?

August 13, 2017
A MyMSTeam Member

@A MyMSTeam Member I'm not sure why they took you off it? What are you on now, if you don't mind me asking? First of all the average amount of years before there is is even a slight risk is 4 years. I've been on Tysabri for 5 years and get tested for the JV Virus every 3 months. If I ever test positive for the virus then they will take me off the Tysabri but getting the virus doesn't even mean you will get PML. If it was really working I'd try some other opinions.- Juat a thought. Good luck!

August 21, 2017
A MyMSTeam Member

They took me off because of the PML risk.

August 15, 2017

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