Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
San Diego, CA

I've recently noticed that I have not eaten a full meal for about 4 days now. I've been snacking on nuts, drinking ensures since Saturday.

Not only is my appetite gone, but when I do try to force myself to eat something, it tastes sour, or metallic, or spoiled. For example, I opened a bag of honey bunches of oats cereal, and used almond milk. The taste was bitter. Had some activia strawberry yogurt. That taste was metallic.

I take 2 bites of something, and the taste is so off-putting that… read more

January 18, 2018
 · 
Reactions
A MyMSTeam Member

I can relate. When I severely damaged my optical nerve with a bad case of optical neuritis in 2016, I noticed that the sudden loss of vision not only impacted my stability (vertigo was really bad!) but it also impacted my hearing (horrible tinnitus) and taste (nothing tasted good and things smelled really strong but not in a good way). Some of this has gotten better over time, but I still can't satisfy cravings since things don't taste like they used to. The worst part is the sense of smell. I was at an establishment a while back that had used a very strong smelling bathroom cleaner - I didn't even go close to the restroom but for me the smell was so intense at the far end of the building that it severely impacted my ability to have fun with my friends. The weirdest part? None of them could even smell the cleaner - even those who used the restroom! It's so strange how all parts of our bodies are so connected and that having your vision depleted can impact other senses so intensely. The metallic taste in particular, my doctor told me is often associated with toxin buildup. We did some work on that through diet, acupuncture, chiropractor - and it seemed to help me quite a bit. Good luck to you - I know how annoying this can be. XX

January 18, 2018
A MyMSTeam Member

I’ve got something similar going on. My taste buds aren’t effected it’s the no appetite. When I’m full my taste buds have always dulled and food becomes really unpleasant if I try to eat more. My husband thinks it’s weird.

Just a caution that it might not be MS. I have an appointment with both my family doctor and the MS Clinic next week because I don’t want to overlook anything by blaming MS to avoid another doctor’s appointment.

Since my apetite is just disfunctional right now, I’ve been using meal replacement shakes in between or with my meals just to make sure I’m getting nutrition and vitamins and minerals. That way I can focus less on what’s missing and eat what I can when I can.

January 18, 2018
A MyMSTeam Member

Oh! It is possible that when taste is an issue to learn how to drink one of those nutrition shakes and barely taste it. I’ve mastered it. (Until swallowing becomes more of an issue... then I’ll figure something else out.)

January 18, 2018
A MyMSTeam Member

I noticed that foods I once loved, now taste different and I get a lot of weird smells. Gosh, so many things have changed for me.

January 19, 2018

Related Questions

View All
A MyMSTeam Member asked a question 💭
Bloomington, IN

A MyMSTeam Member asked a question 💭
Amelia, LA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In