Hi im currently on no medication. My neurologist said that you need to have to have 2 relapses within a year for them to even consider putting you on them. My concern is getting worse before they consider treating me. Has anyone else been told this. My first symptom was numbness in my feet which then moved to my legs to below my knees which is constant occasionally its worse. I then have had where from my waste to chest has been numb and if i touched it it felt like a thousand ants following my… read more
Since you’re officially diagnosed I’d find a new neurologist. The whole point of any DMD is to hopefully reduce the number of relapses and progression.
Dump the Neuro! I've had RRMS for 27 years. I've done a lot of research and seen different stages and types of MS. These meds are for RRMS! They are to slow the progression. I've spoken to many patients over the years in far worse conditions and that is when they won't give you these meds. Make sure the doc is a MS specialist! Just read that you were in the UK. Don't know how things work there but you are a candidate for these meds. Good luck.
That doesn't make sense to me. I agree you should consider another neurologist.
I agree with you, you should be on meds, get another opinion from another neuro, my dr put me on tecfidera ASAP to help keep me from from getting worse
This sounds like a UK policy. I think that if youve had less than 3 relapses in a year the belief is that the lesions are not active enough for DMDs, and they may even treat 1-2 relapses as Clinically isolated syndrome (check The NHS website). I know its not easy in the UK to just get a neurologist. I would pester your GP to refer you to another Neurologist hospital which specialises in MS. I was diagonsed last year and have no MS nurse they are really slacking with funding cuts.. luckily they needed guinea pigs for
a drug trial so im getting DMDs that way. The MStrust.org and MS society and great resourses for support and info give em a call. Good luck with getting through to the right support