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Hi all i been away for awhile but lately i am experiencing facial left side numbness on and off and left side of tongue numbness. Has anyone had this symptom? I have my 2nd MRI of this year schedule Friday. 1st one in February did show lessions by docs were unsure if they occurred during 3months gap i waited after intial dx get on gilynea. They want do this MRI see if more lessions or growth in size. Also mention blood work showed possible sign of infection not sure what that was about. Any… read more
Ask about Myasthenia gravis (MG), an autoimmune disease that mimics MS.
“The muscles around the eyes tend to be affected first, causing the eyelids to droop. Patients may experience double vision, weakness in the arms and legs, and difficulties chewing, swallowing, speaking, and breathing. Involuntary muscles, such as the heart muscles, are not affected.”
https://www.medicalnewstoday.com/articles/17996...
Hey guys they found 5 new lessions in brain and lessions in spine it is MS. gilynea isn’t working. I am on 3 days of iv steroids and doctor is resubmitting for ocrevus infusion. Hope my insurance approves it
@A MyMSTeam Member
Have you asked the Doctor if it could be Bells Palsy and not your MS ?
Probably makes you feel like a bit of a human pin cushion. I've not had the facial numbness and tongue numbness, but I know others who have. I'd probably go ahead and get the second MRI to see if there was significant change. Can they do anything in the meantime like give you steroids? Was there anything going on in your life that might have made things worse (stress, etc.)? I would probably look back over the past few months and try to pinpoint things that might have been going on that I wasn't paying attention to that might have impacted my body's response. Good luck!
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