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I have used self-catheterisation with limited success (my husband has even done it for me). I now have an indwelling catheter but am considering an suprapubic one. Could anyone who has one fitted tell me of their experiences please?
I have been through the journey of self catheterization and I'm now using a suprapubic catheter which makes the whole experience easier, however there are downsides with reasonably regular infections. you have to be super super clean in the changing of bags I use carers who always have to keep gloves on in the process. District nurses come and change the catheter around 8 to 10 weeks unless your doctor surgery has a qualified nurse with experience of doing this in this surgery. But overall it gives you enormous freedoms without having to find toilets all time while you're out. I have even, because I use a wheelchair all the time, use a large bag in a very discreet homemade cloth bag ( it's amazing the skills that husband's have to find in looking after their wives with MS) on the arm of my chair which reduces the amount of times I have to visit the toilet.
I have had a long time (about a year) with a urethra tube cathea and that was eventley found by the hospital that my MS has blocked my tube and wont let much out. This was then decided to get a suprapubic fitted. I wasn't too clear about this but I have found it cleared up my bowel problems and made me more aware of my bladder.. I still get a little dribble when I have to really force the shit out but that doesn't cause me any problems. The only thing I can warn you about is the flow valve could catch on your wheelchair and cause a problem and always check it's off after emptying your bladder. This is the closet I have been able to have a pee,it doesn't feel the same but it works. It has given me a lot of freedom I had when I was on a bag system.
@A MyMSTeam Member I'm in Basildon and NHS Botox is planned imminently.......although I'm not sure I really want it done.... fear of the unknown I think.... xx
I kept getting UTIs leading to relapses every month and Drs said if I didnt have a suprapubic catheter I would end up in a wheelchair but I had more UTIs with it and did end up in a w/chair! My body didn't seem to like it. it kept blocking and having to be changed! Quite painful! Hospital let me take it out and I ISC now.
It does have positive sides! No need to find a disabled toilet so u can drink loads! I know people who have no problems so maybe just me!
Sorry to say that I have little knowledge of this.
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