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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 17, 2018
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A MyMSTeam Member

Here is a link to info on trigeminal neuralgia. I thought it would be good for you to read in case your facial pain sounds like it could be this. My MS doc diagnosed me with this...our wonderful companion MS can cause this too. He prescribed a medication called carbamazepine to treat it. Thank God it worked. I just wanted to pass this info along because the meds helped me and maybe they could help others who suffer from this. It can truly be excruciating pain and this med was like a miracle for me.

https://www.mayoclinic.org/diseases-conditions/...

April 19, 2018
A MyMSTeam Member

It is not fun. When it occurs for me, if i turn my head certain ways it can intensify the pain. My issue now is the right side of my face burns. It is almost like I have road rash. Again, was told it is nerve issues. Thank you MS for everyday giving me new challenges : ).

April 19, 2018
A MyMSTeam Member

@A MyMSTeam Member - Yes! That’s exactly what it felt like! Pretty darn intense, and I went through 2 childbirths lol. I did some checking online...it sounds like occipital neuralgia. I’ve had trigeminal neuralgia, which hits your face...I guess it’s similar just a different nerve. Trigeminal was worse. Anything hitting your face or teeth (including air) could trigger it. It’s awful. But, the doc gave me Tegretol for it and Thank God that worked for me.

April 18, 2018
A MyMSTeam Member

I get the stabbing pain in the back of my head. I described it to my doctor that it feels like someone is stabbing me with an ice pick. He told me it is nerve pain.

April 18, 2018
A MyMSTeam Member

Not teeth probs is it ?

April 18, 2018

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