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I was just diagnosed with RRMS 3 years ago. So everything is still new and somewhat scary. Yesterday I had my first symptom that landed me in the ER. I was at work (feeling embarrassed about it) and everything was fine then each step made the world kind of go sideways. My co-worker said I looked drunk and my boss had to drive me home. It was like being on a boat with huge waves that I couldn't see coming. I felt like a ping pong ball in the hallway. Even moving my head started that fuzzy… read more
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Members rallied around someone newly diagnosed with RRMS who experienced scary dizziness and balance issues for the first time, offering... Read more
I just want to remark about the great metaphors used when describing symptoms: a ping pong ball in the hallway, huge waves you can't see coming, etc.
Many of you can take some comfort (I hope) in how well you describe what/how you feel.
xoxo
Sorry you are experiencing your symptoms for first time, all is scarey as symptoms are out of our control. I found this, I have tried many, site to be most helpful dealing with same issues, open, caring, helpful, sickies that understand. Did they identify type of MS? Many, I think, most of us experienced symptoms prior which led to diagnosis. Balance, I walk like a drunk most days, staying close to walls or handrails, some days better than others even walking tens of meters like a norm. Vision issues at time loss of vision and sharp electric pain in one eye and keep a roll of toilet paper nearby for tearing eyes when bedridden. GP searching for opthamologyst with MS experience for referral. I have PPMS and my symptoms now progressed to more scarey so looking for best experts (new to my area) to slow progression. Currently only on Lyrica and Baclophen which just deal with symptoms not progression. Nothing but love and good advise on this site, hope you continue to look for support here.
@A MyMSTeam Member I also totaled my car just 2 days before my diagnosis.... ran a red light, literally in a brain fog, forgot I was even driving... yes, anyone still driving, please be careful and use more sense than I did getting behind the wheel... thank goodness no one was hurt in this case
In the beginning before I was sure of MSbut was told by doc that it looked very possible, I was looking a a new car. As I was looking as I was going through the lot while leaning against the cars for support, I told the salesman that the walking was due to an ear infection. Just weeks later, MS was verified. That new car was the car that I totalled. Be careful and don't ignore the possibilities.
Good for you!
Just use as needed no more. You don't have to use one or them all the time but support is there if you need it.
I walk like a drunk a lot and overly confident, nursing bruised ribs now from a fall, regarding my balance but,,,,hopefully that fall knocked some sense into me.
In the village where I live there are walls along this sidewalks so i always something to run my hand along or fall into for support.
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