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A MyMSTeam Member asked a question ๐Ÿ’ญ
Red Deer, AB

It's been less than 2 years since my diagnoses. (December 2016.) Copaxon since last January (2017) Now because I had 1 relapse they want to switch me to Abagio, Tecfidera or Gilenya. They never did an MRI, just assumed it's not working due to the relapse. I'm terrified of all 3!! I don't want to switch. Had anyone else been pressured to change meds due to a relapse?? Is this not what RRMS is?..... are relapses not how this disease works?!? I'm so confused and unsure. Help!

May 17, 2018
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A MyMSTeam Member

Hi I have been on Copaxone for 15 years now. It has really kept mine at bay. I would get a second opinion and request a comparative MRI. I just requested one. The last one I had was about 8 years ago. I have SPMS so my symptoms are pretty much constant. Hank in there and I would get a second opinion.

May 18, 2018
A MyMSTeam Member

Yeah I would get a 2nd opinion.

May 17, 2018
A MyMSTeam Member

Hi krys. I am so sorry to hear of your relapse and worries :( I also was newly diagnosed in 2015 was on tecfidera was sick as a dog on it and I had a second mri that showed progression so they switched me to aubagio...i had no adverse affects from aubagio but a 3Rd mri showed more progression and now I'm being put on lemtrada a second line treatment because 2 first line treatments didn't respond. My neurologist explained it by saying everyone starts at an rrms diagnose's and that only after time, and constant progression can they then diagnose you spms or ppms. So they keep trying you on different meds first line twice then on to second line meds twice if that has no effect on your ms then you are given a ppms diagnoses for which there is no treatment. The Dr's are just unsure of how to diangnos this disease with out having to wait and monitor the results because of the time lapse there is greater risk of disability developing. Stay strong and good luck honey. Sending prayers your way ๐Ÿ™

May 17, 2018
A MyMSTeam Member

Only beta seron has been around longer. You're right, there is no risk for PML with copaxone. Also, the disease does progress through relapses and remissions. The drugs are supposed to stop or reduce those in order to reduce our eliminate the damage in our cns's.

So long as there is a long list of other options out there, don't worry so much if your doc wants to try something different. He's trying to keep your brain in as good a condition as possible. Sometimes the difference is really limited. When you have relapses, he looks like an ineffective Ms doc. No one wants that rep.

Do get concerned when the list of options starts thinning. Having a choice is always nice. Just having a step to take is pretty nice. For so long folks had nothing to do.

Hang in there.

May 19, 2018
A MyMSTeam Member

copaxine put me in the hospital twice, my legs felt like they were 50 pounds apiece. so the doctor changed my med

May 18, 2018

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Troy, MI