that is such a hard subject. my wife and I took 6 years to understand our communication. you are both human and will both have your own issues during this. you just have to see their point of view and reflect it even if you don't understand.

usually I get mad when I am feeling physically beatdown, and I use to wonder why no one cared. I guess I thought I wanted them to feel a certain way and when they dont, I would get mad. kind of poor me, but that isn't reality.

I think couples therapy and individual therapy with a counselor would be the best options. It may help with relating everything and fix some of the issues with communication. He may also be lost and not know how to help which can be both frustrating and isolating. Therapy has worked for me and those I am with in working to get to the root cause and work on a mutually agreed upon solution. That or support groups for both those living with MS or friends and family of someone with MS

MS, is one of those things that if you don't have it, it is hard to understand what it is like. My wife has MS, and I had a hard time getting to know the monster. One of the first things I did was read everthing I could to find out more, this was scarry, but not as scarry as it is if you have it. it will become the third person in your relationship, and one you can't kick out. He is not able to pick up on anything about MS as he is not living with it, so give him an idea what it is like. get him to try this: stretch his hands out in front of him, little fingers upper most, then keeping his hands the same way up get him to place his palms together and interlace his fingers tightly. (now for the hard bit) Tell him to twist his hands so that they are just under and in front of his chin. (now for the fun part) Point to, but do not touch, any of his fingers and ask him to move it. his mind will take time to get it, but you will see him strugle a little with moving the one you pointed at. It gets the massage across better than a thousond words. once he sees that, that is what it is going to be like for you to do almost anything, he will have come a long way in his understanding.

I'd just say honestly talk to him. It's going to be OK btw. You don't know what someone can do to understand what you're going through, what they can do to help, and on and on and on. Tell him that. Say we both know I've been diagnosed with this disease but nobody can tell me what to do next. No one knows if it's because I was born with it or somehow caught it. oh yeah, there's no cure for it either. That's very frustrating. Tell him that and know he's not going to have any better answer than you do but that's OK. You'll figure it out together. If he wants to go out, let him but explain you can't always go out as often anymore. That frustrates you, him, your son but it just is and remember that makes everyone feel guilty. So talk about it. Remember and I know from experience, it's 10x easier to be sick than to care about someone that is. Give yourself a break but give him one too.

Unfortunately no one can know exactly how it feels for us as individuals. Emotional support is as individual to us as this disease.

My husband has a sister who was dx with RRMS about the same time I started having symptoms. I let it go for decades, just pushed through because I had a family to raise, 4 kids in all. I may add that I was dx with CFS before I met my husband, so symptoms were dismissed as related to CFS. Anyhow, he had some idea what we were dealing with, although he expressed that he was worried about her one day needing a wheel chair and he's never mentioned that in regards to me, but then he's lived with me for decades seeing me push through. My guess is that your boyfriend also saw you push through for the better part of your relationship. Now that you are dx, does he still see you pushing through?

After my dx, my husband was dx with diabetes. Now he can understand in part the numbness and tingling because he also experiences that. Understanding is one thing, but emotional support is another. We have been going to counselling, sometimes we go together, other times I go alone. Sometimes it helps to speak to an unbiased person to understand our own needs and how to achieve them. Obviously you want emotional support, but more importantly, what is your definition of emotional support? Find out what that is for you, then communicate it to him. Above all, remember it is a two way street. Keep the door to communication always open.