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A MyMSTeam Member asked a question 💭
Reno, NV

Does anyone have problems with limbs going to sleep while being awake and staying that way? Even my back is numb!?

October 10, 2018
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Answer Summary

Members connected over the frustrating and often frightening experience of limbs going numb while awake, with many sharing that it affects... Read more

Members connected over the frustrating and often frightening experience of limbs going numb while awake, with many sharing that it affects their legs, back, and even whole sides of the body. Several members described practical ways to manage the sensation, including moving around frequently, rubbing the affected areas, and doing stretches to bring relief. A recurring theme was that numbness, tingling, and heaviness are common shared struggles in this community, with one member noting that persistent numbness was what led to their MS diagnosis after seeing a neurologist.

A MyMSTeam Member

Yes I have this all the time. and extreme heaviness in legs and bottom, intensified when sleeping or when lying still and sitting. I have to move around as much as I can and do some rubbing it helps.and stretches
Really sucks. I have tingling and burning sensation too.

October 10, 2018 (edited)
A MyMSTeam Member

OMG yes. Always. Increasing every day damn it

October 12, 2018
A MyMSTeam Member

Actually, it's what led to my Dx'd with MS. Left side numb(no feeling at all) from hip to feet! Was like that for months before I saw family doctor. He sent me to neurologist, which started me on steroids. Feeling came back fairly quickly. Good Luck!!

October 12, 2018
A MyMSTeam Member

Yep yep yep! As I'm standing here. Yep.

October 11, 2018
A MyMSTeam Member

Yes all the time

October 11, 2018

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