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A MyMSTeam Member asked a question 💭
Tiburon, CA

HI all
I have to laugh at my topic name - MS is so strange
But I have been having two new symptoms that are weird.
One - sometimes when I stand up or get out of bed and walk it feels like I am stepping in a puddle of water. At first I kept reaching down thinking that someone had spilled something:)
Two - now when I am holding something in place - like my cell phone up to my ear for any length of time - when I try to extend my arm the arm or shoulder muscles have cramped and it is intense pain… read more

February 23, 2019
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A MyMSTeam Member

My feet are hot cold n wet all the time I take Gabapentin it help a little no side affects so I go with it

February 24, 2019
A MyMSTeam Member

Andrea, Your comment that it feels like you're stepping on a puddle is interesting, because a few times recently, I've actually bent down to touch the floor, thinking I stepped on water & wondering if something in the house was leaking, but never have I found water when I've touched it with my hands. I never gave it any more thought until reading your post! Is this MS related? I was diagnosed 9 months ago, so this is still a learning experience for me.
Pstevens

February 23, 2019
A MyMSTeam Member

I also feel water running down my leg or that my socks are so wet it feels like they squish. It comes and then goes almost as fast.
I'll take the water feeling over hypersensitive tops of my feet at bedtime. When the weight of the covers are uncomfortable and its almost impossible to sleep on my stomach because the pressure against the bed is unbearable. Its not every night but it happens too often.
Sometimes my muscles get tired fast and start to feel strained and burn. It also comes and goes.

None of us are alone! Everytime I have asked about a crazy symptom others have shared their experiences. I'm so thankful for everone here!!

February 24, 2019
A MyMSTeam Member

Many times there is no answer as to why we experience the sensations, pains, and weirdnesses that goes on with MS. Sometimes there are answers that can help make sense of them, even if it doesn't make it go away. 🙃

I was really interested in reading everyone's having the feeling that things were wet. I've had this sensation pretty much from the beginning, both in my hands and feet. In my case, when I spoke to my neuro he showed me where the majority of my lesions are: in the parietal area of the brain. He also explained that the parietal area controls sensation and then, BAM!, I understood why this happens to me!

It still sucks.
But, it doesn't suck big time!
It's a sensation and yeah, I have to spend time processing what I feel - wet - then having to think, "is it REALLY wet?" - look (with s&*ty MS vision) to see if there's water or not - roll my eyes and move on. 👁
And I'm grateful I am able to move on. 😎

Talk to your neuro about where in the brain your lesions are and what that specific area controls. You may be able to understand much better what is happening with your body!

February 25, 2019
A MyMSTeam Member

I love this site to hear stories like yours. I sympathize with your issues, but it helps me to hear your stories & connect with people who understand & can relate to this weird disease.

February 24, 2019

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