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A MyMSTeam Member asked a question 💭
Mims, FL

I’m sure everyone on here is annoyed and frustrated with their life having MS but how do you tell your loved one that you need your own space sometimes and just be left alone. Unfortunately I enjoy my time alone and really don’t need to always be talking. I used to work full time but unfortunately I can’t anymore. Working was my getaway from my home life with my family but now I’m always around my husband . Don’t get me wrong I do love that he’s here for me, but sometimes I feel smothered.

March 25, 2019 (edited)
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Answer Summary

Members connected over the relatable challenge of needing personal space while living with MS, especially when a loved one is always nearby.... Read more

Members connected over the relatable challenge of needing personal space while living with MS, especially when a loved one is always nearby. Several members shared that being honest and gentle works best, saying something like needing a quiet moment, and that over time partners adjust and understand. A recurring theme was the emotional weight of feeling smothered or guilty, but also the healing power of small solo rituals like tending to plants, reading, caring for pets, or simply retreating to a quiet room.

A MyMSTeam Member

Have you ever read Kabul Gibran’s “ The Prophet?”
It’s an invaluable little book that I’ve had for many years. It serves as a wonderful, sensible guide for living a peaceful life.
When Gibran speaks on marriage, he discusses the need for one’s own space in a beautiful way which my husband and I have subscribed to throughout our 44 years together!
My husband and I also have different hobbies and we respect our differences and need for doing our own thing.
I am not the same person I once was. None of us are.
Diagnosed later in my years, I am still trying to learn myself, I cannot expect anybody else to. I try to be patient when my Mother tries to figure out how and why this happened to me, when my husband sees me struggling and does not intervene nor offer to do so, when others do not accept my offers to help with ANYTHING because I am too slow. What once was hurtful is now something I have learned not to get to me nor make me angry or sad. I basically go into another room and fade into the walls. I am starting to like it there!

March 26, 2019
A MyMSTeam Member

Boy you hit that one on the head

March 25, 2019
A MyMSTeam Member

Everybody needs time alone

March 25, 2019
A MyMSTeam Member

Tell them u need time alone!!

March 25, 2019
A MyMSTeam Member

I know that feeling, what I do is just politely and honestly tell them I need to be alone for a bit . At first it comes as a shock they thought they’ve done something wrong or are angry but then it becomes the norm . Give it a try .good luck 🙂

March 25, 2019

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