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A MyMSTeam Member asked a question 💭
Walpole, NH

I have had 4 neurologist say all my test and MRI they believe I have MS but all want me to have a Spinal tap which I keep saying no cause have issues in lower (polyploids think they them) small tumors so I don't want to screw up my back to know If have MS or not need advise if anyone been diagnosed with not having a Spinal Tap ?

February 19, 2020
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A MyMSTeam Member

I went for 3 years before they could diagnose me with MS. I had many MRI's the only lesions that showed up were 2 old ones I had after having encephalitis in 1989. I still do not have lesions because of MS. I also had a spinal tap early on and it did not show MS. The second spinal tap into my 3rd year of not knowing what was wrong with me showed I had MS. So yes I recommend the spinal tap.

February 20, 2020
A MyMSTeam Member

I have severe epilepsy and was put in the hospital, my MRI showed several lesions so in return I had the spinal tap to confirm. Turns out yes I have MS
I would recommend getting the spinal tap because it can be the difference from something progression to maintain.

February 20, 2020
A MyMSTeam Member

From what I understand, the spinal tap is "recommended" for frequently now as a type of confirmation. I've been told they can get a better idea of what they're looking st with the fluids. HOWEVER, I've met many people that have had MS for years that have never had to do a spinal tap. I have also had several neurologists tell me it's recommended but not necessary for diagnosis. I personally refused one, on several occasions. I saw my MRI images, I saw the lesions, and got multiple different drs that gave me a diagnosis. Its your body, you are not required to do anything you do not want. They should be able to diagnose with MRI and bloodwork.

February 19, 2020
A MyMSTeam Member

I had mri with one neuro and said you have MS, so he sent me to a specialist that sent me for a spinal that came back negative for ms 🤷🏻‍♀️

February 19, 2020
A MyMSTeam Member

I had a spinal tap an showed negative but it turned out to be false negative I was in early stages an you need to be in a further stage to be positive I know other people this happen to.

February 25, 2020

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