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A MyMSTeam Member asked a question 💭
Los Angeles, CA, CA

I have been using rebif for 1 year. When I'm not taking painkillers, my pain becomes unbearable. I take painkillers two or three times every day and I know this is very harmful. My doctor did not help me, she told me to continue taking painkillers. But I think it's not normal anymore and I'm afraid. I would be glad if you share your experiences with me.

April 30, 2020
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A MyMSTeam Member

Consider discussing a change in medication. Rebif is a drug that was once described to me as evil. It put me in Hospital twice.

May 8, 2020
A MyMSTeam Member

Tell your doctor that you're not taking it any more and why. You might want to find a neuro who will listen to you.

April 30, 2020
A MyMSTeam Member

I was taking Rebif and had pain. Then my nurse practitioner put me on just a small dose of Amitriptylene (25mg.) and it helps so much with the pain. So talk to your dr. about it. Also CBD oil helps when the pain gets bad.

May 14, 2020
A MyMSTeam Member

Andy, I guess what works for some is another mans poison. Rebif worked great for me the first time I took it, and then I when off it when I went to see a Lyme Disease dr. because I really feel that is the cause of my MS. When she told me to go off my Rebif, I was in agony, and she told me that when someone has been on an immune suppressant drug for a long time, sometimes that happens. I told her that I would rather be dead with MS than to live with that pain I was going through because that was just the start of the Lyme treatment. It was only going to get worse. The problem was, when I tried to get back on Rebif, the Insurance Company said I had to requalify and it took over 6 months to do so. I had benign MS before this. I do not know what kind of MS I have now. I do not think it is RRMS. I think it is SPMS.(I think I have the right letters)All I know I is I am a lot worse than I was before and now I also have neuropathy in my feet that goes all the way up to my knees. I got my license for Medical marijuana, but I have only used it three times. I only bought edibles, but it is really hard to control the amount of your high, so I only use it when I am in serious pain. I will say it does work and I make sure I do not have to drive anywhere.

May 15, 2020
A MyMSTeam Member

I was diagnosed with ms a month ago , i m still waiting for the results so i can start the medicine . Im in pain and i use a lot of painkillers as well. I just want to share that a lot of people been telling me to try cbd or medical marijuana. I ve asked some people that they use it and they say it helps them with the pain , spasms etc. I havent tried it yet because im still searching . Maybe you can look it up . I hope you get better

May 1, 2020

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