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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Locust Fork, AL

I had to start taking melatonin and benedryl to sleep. Last night i didnt take cause i wanted to see if could sleep without help. I dont want to take meds to sleep if dont have to but i didnt sleep. My question is once you started taking sleep aids were you ever able to sleep without them?

October 12, 2020
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A MyMSTeam Member

Most sleep aids like Ambien are habit forming, which presents a potential problem. I've learned to stop eating hours before bedtime, especially sugary foods, also going to bed with an empty bladder, to eliminate the need to wake for a bathroom trip. I try to make bedtime 🌙 😴
Special... burning Essential oils, relaxation sounds on YouTube...
Ooh!! My wife and I made rice socks that were soaked (just the rice) in lavender oil. We call it our baby bottles 🍼
If you place it in the microwave for 1-2 minutes, you will find a soothing transition to dreamland...😴

October 12, 2020 (edited)
A MyMSTeam Member

Every one above is correct. Fun with chemistry!👩🏽‍🔬
Melatonin worked great for 4-5 years. Try different doses. One friend thought her dreams were more vivid and she did not like that.
Target and Costco sleep aids have different formulas; both work. I take 2 pills.
3 are too many for me.
NyQuil nighttime works. Most stores have their version. Walmart has a liquid sleep without the clod/flu ingredients. That has worked.
One relaxing technique suggests relaxing your face: forehead, eyes, checks and jaw.
I use a hot water bottle for my feet and socks, which I pull off when I feel too warm.
I always wear an eye mask.
I lay in a position I have fallen asleep in before. And tell myself this has worked before.
If I need to remember something about tomorrow, I write a good note. And tell myself I don’t have to worry about it now.
I tried tart cherry juice.
Warm, sweetened milk has worked.
A warm shower before bed has helped me.
That’s everything I’ve tried/do.
When trying a new method, choose a time when you don’t have to set an alarm to wake up.
Have faith.
There is some trick for you.☺️

October 12, 2020
A MyMSTeam Member

I'm not on any prescribed meds for sleep.
I just take 1 Extra Strength Tylenol at night which relaxes me, take care of any pain that I may be experiencing and helps me to sleep.😴

October 12, 2020
A MyMSTeam Member

A common sleep disorder associated with MS is Narcolepsy.
Narcolepsy is a central nervous system disease which causes periods of sleeplessness, sleep attacks and extreme daytime drowsiness. According to a separate Healthline report, “The Center for Narcolepsy at Stanford University School of Medicine reports that one in every 2,000 Americans has narcolepsy.” Recent research shows that brain lesions associated with MS can be a contributing cause to an onset of narcolepsy. Dr. Rosenberg, a sleep medicine specialist, reports, “MS is listed as the fourth most common cause of narcolepsy that is associated with other disorders.”

Narcolepsy can also cause comorbid conditions like cataplexy. According to the National Niemann-Pick Disease Foundation, “cataplexy is an abrupt temporary loss of voluntary muscular function and tone, evoked by an emotional stimulus such as laughter, pleasure, anger, or excitement.” For those of you with a sleep disorder and MS, cataplexy can strike at the most inopportune moments like during sexual intercourse due to the emotional stimulus. There is a probability that if you have a sleep disorder and MS that sexual activity can trigger a narcoleptic response. If your partner does not understand the disease, then the potential exists for your partner to feel like they are the problem. Even though it is tough to discuss intimacy with your partner, communication is critical when MS leads to sexual dysfunction.

While narcolepsy is a common sleep disorder with MS, there are also other sleep disorders that you may experience as well including insomnia, rapid eye movement sleep behavior disorder, restless leg syndrome and frequent urination. There are also sleep breathing disorders which may prevent you from getting a good night’s sleep.

If you have MS and suffer from a sleep disorder, all is not lost. There are many treatment options, including holistic alternatives. Please tell your doctor immediately if you suffer from a sleep disorder. You may qualify for a sleep study, which allows a doctor to monitor you while you sleep to evaluate what is happening to your brain and body during sleep. Whatever the cause of your disorder, treating it will go a long way to helping you in your battle with MS.

October 12, 2020
A MyMSTeam Member

I take 1 mg Melatonin. It helps, although I can sleep without it. Occasionally I will take an Advil PM.

October 12, 2020

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