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A MyMSTeam Member asked a question 💭
Ipswich, UK

I am not the person I was, my body doesn't work in the same way.

Do I give in, or fight, and learn to use my new body?

We have to learn our changed bodies like a baby learns the world - how do we walk and talk, how do we move and think? Babies don't grow by sitting still and waiting, we can't afford to either.

The person we were physically may have gone, so be the Best New Person and push forwards.

Answer Summary

Members connected deeply around the question of who they are after MS has changed their bodies, with the overwhelming consensus being to... Read more

Members connected deeply around the question of who they are after MS has changed their bodies, with the overwhelming consensus being to fight, adapt, and learn to use their new bodies rather than surrender, comparing the process to how babies learn the world. Several members shared powerful strategies for navigating this transformation, including staying physically active even if movements look different, exercising the mind through reading or hobbies, practicing self-compassion by allowing space for grief while refusing to let MS define them, and surrounding themselves with supportive community, pets, or faith. A recurring theme was the importance of accepting what cannot be changed while fiercely protecting what remains, celebrating small victories, and choosing to see themselves as warriors who are constantly evolving into better versions of themselves despite MS.

A MyMSTeam Member

Always remember you are not alone. I have had MS for almost 16 years following a dairy free diet and take 5000iu D3 and high dose fish oil every day. I can now walk without my walking stick and feel really good and happy. My neurologist is so pleased and said keep doing what you are doing as all MRI show original lesions stable and no new lesions. Please take care

July 22, 2022
A MyMSTeam Member

Since my diagnosis 25+ years ago, the new me, over the years, became a much more attentive mom, especially when my daughter was younger; I became a step mom to 2 wonderful girls and am now loving being a grandma; I became a self taught artist; somewhat of a field dog trainer (still learning); and more! Ive always been one to adapt and overcome…with ms I had to learn new ways to do that, and its a constant challenge, but Im a stubborn Irish and Scottish woman, and I refuse to give up or give in! Some days thats very hard to do, but when those days come, I have my little “pity party” for a while- then I pull up the big girl panties and move forward. Ive learned to be very in tune with my body and I take better care if myself. Ive learned to search for things that are good for the soul, and to eliminate as much negativity and stress in my life as possible. When I had to give up a career that I loved and worked so hard for, I thought it was the end if the world. Turns out it was a whole new beginning of a very different life where I learned to focus on whats truly important. Every cloud has a silver lining!

July 14, 2022
A MyMSTeam Member

Never ever give up! You are so much stronger than MS. Yes! Even when it seems impossible, we learn to adapt. You are a warrior who is able to do exceedingly abundantly above all because who are fearfully and wonderfully made. Enjoy your day!

July 14, 2022
A MyMSTeam Member

I totally understand what most of you are saying. However with my PPMS by the time mine progressed enough to be diagnosed I was dealing with things I wasn't ready for. The Shepherd Center in Atlanta is working to make me comfortable.
When someone loses their career, car, cognitive problems, bladder, bowel, sex and is overcome with some of the worst fatigue and anxiety, and there is more!

Being a warrior is good but sometimes you have to realize you have to call a truce , and go with the flow, and not feel guilty that your new life sucks! All I can do is hope for some good days.

July 15, 2022
A MyMSTeam Member

I am a New Person for sure. This New Me has many limitations. This New Me is still trying to find her place in this world that seems to have such limited knowledge about this disease. Since I LOOK FINE, I'm expected to BE FINE! I feel like I'm always letting my freinds and family down ,as I can't be super woman and mom anymore.but I have to try and not feel this way . I know the truth.

July 14, 2022

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