From the first Dr visit, whether you asked or they suggested that it may be MS, what steps did it take and how long did it take to get your diagnosis?
From the diagnosis, how long before you received any relief in treatment?
I just ignored MS symptoms for 18 years. I might have a big flare event, be freaked out but say, if I feel like this in a week, I'll see a doctor. Joke was on me as it turned out to be RRMS. When I got diagnosed, I was having issues and went to an Urgent Care after work where the doctor said I had all the symptoms of a brain tumor (both bad and wrong to say) but he called a hospital but when I went directly there, no waiting. After a mentally uncomfortable MRI, I thought we were looking for a brain tumor, I was diagnosed with MS. I started on a DMD right away but it blew through 3 DMDs over 10+ years before finding my DMD. The thing I learned from this whole experience called MS is to be your own advocate and to ask why isn't it MS, which was the best option for me, and to ask how it could be clear that my DMD was working.
I ignored issues I now know were MS for years. My issues finally stopped me from being comfortable driving, but I still went to work but then was brought to an urgent care facility. That doctor moved my legs around and asked me to do that as well. He then said I had a brain tumor and called ahead to a hospital. That freaked me out but I did get preference when I arrived at the hospital. Then I got a MRI which showed a large number of lesions. So a gut wrenching 8 hours. I will say though an MS diagnosis sounded better to me than a brain tumor. Ah, youth.๐
It look me nearly 20 yrs for a dx. And another 4yrs to be on meds that are working for me. The more I went to hospital the more they listened to me until I got the right GP who actually listened
jessica, UNDERSTAND
I too have a story to tell but not now