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A MyMSTeam Member asked a question 💭
Invercargill, NZ
April 13, 2023
 · 
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A MyMSTeam Member

Hi there, thanks for your reply. You are right nerve pain is nasty. I have a new doctor he has given me nortriptyline, unfortunately it has not touched the pain. Here in NZ it's very hard to find a doctor who knows much about ms, I get to see my neurologist once a year, so if there are new symptoms you are on your own.

April 14, 2023
A MyMSTeam Member

I've had MS for 25 years now, nerve pain is the worst
I have tried Gabipentin, Lyrca is another name for it. I've tried 😪 alot of pain killer's but nothing really took the pain away. Now I am going to try a nerve stimulater which they put half way up your spine. I pray that it will take some of the pain away.

April 14, 2023
A MyMSTeam Member

Absolutely. Would love to hear about it. I was diagnosed in early 2001 after a number of years dealing with issues I now assume we’re ms related issues, dr and hospital visits. Fast forward to today.and progression of the disease and my arms legs below the knee and a couple others to a lesser extent are all screaming with nerve pain. If you find something that works for you, please share.

August 27, 2023
A MyMSTeam Member

Tried gabapentin but could not tolerate it. I have had MS for 44 years. Never had bad nerve pain until 6 months ago. I believe my Covid booster advanced MS into Transverse Myelitis. Pain in both upper arms is constant and difficult to deal with. Interested in hearing results of nerve stimulator.

April 18, 2023

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