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A MyMSTeam Member asked a question 💭
Connecticut, CT

Looking for a friend to compare notes with. Diagnosed Oct 2022 and am 69 years young. Everyone I've met in support groups has RRMS and are taking DMT's
I'm considering Ocrevus but have a history (2010) of breast cancer.
Any comments are welcome.
Cheers!
Suz2

May 16, 2023
 · 
Reactions
A MyMSTeam Member

I am 76 years old. I’ve been on Orcevus for 3 years. Unfortunately for me the infusion lasts shorter every year. I am in secondary progressive stage as of 3 months ago. Be careful of the heat and humidity. If you wake up and your body says you are very tired, go with it. Anything you have planned for the day can wait for a few days later. Always go with what your body tells you.

May 16, 2023
A MyMSTeam Member

Please note that unless you have active lesions then Ocrevus is not going to help you, even if they told you that you are PPMS.

And.......

Here are four very good Ocrevus groups on Facebook to join....

https://www.facebook.com/groups/860023917470405/

https://www.facebook.com/groups/438394603178145/

Here is a group specifically for Ocrevus and Progressive MS....

https://www.facebook.com/groups/152024362299714/

Here is a group specifically discussing Ocrevus failures....

https://www.facebook.com/groups/1218760311856584/

May 17, 2023
A MyMSTeam Member

I am 76. My grandmother and her sister died of breast cancer. At my age I would rather take my chances with Orcevus and hopefully extend my life.

May 17, 2023
A MyMSTeam Member

Thank you!

May 17, 2023
A MyMSTeam Member

thank you for your comments. I'm guessing you were initially diagnosed with Relapsing Remitting MS as Secondary Progressive often follows that. I do try to listen to my body, but I find that more rest leads to more rest so I try and get myself moving. Not always easy

May 16, 2023

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