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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Crewe, UK

Can anybody try to describe what their experience of the MS Hug is/was ?? I’ve had a very strange full body experience and it’s happened a couple of times now but I’m u sure as to what that felling is ??
Any info will be greatly received & Thank You xx

July 31, 2023
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Reactions
A MyMSTeam Member

sometimes in bed and almost wake up, i realise im awake, but i lie there, cant/wont move thinking that ive passed away and im looking down at myself & worrying what that my family will find me dead… its so weird, but believable 😓 anybody else had/experienced this ☺️🙁

March 15, 2024
A MyMSTeam Member

I don't know if it's a MS hug. I have experience the most intense pain of my life from pain starting in shoulder points then nausea then puke and extreme pain in chest worse in my life. Limbs go spastic uncontrollable urge to move but movement makes worse
Last 10 to 30 minutes
Longest 30 minutes of my life brought on by stress poor eatting dehydration.

July 31, 2023
A MyMSTeam Member

Hi DawnBroadfield,
I think what you've experienced is called s'sleep paralysis' 🥺 I get it sometimes and without warning. My daughter also gets it too..scares the living daylights out if her as she's Autistic 🥺 but if you can, exile it's happening..breathe and repeat it in your head until uou come out of it. Also tell yourself nothing bad is going to happen, let it ride out..get calmer and it will go finally. Usually its a short space if time but it feels like forever 😭😭
I hope this answer helps you and others too🥰

March 16, 2024
A MyMSTeam Member

well for me it kind of feels like an elictricified hug i almost want to hold my breath because with every breath it feels like my chest/ lungs heart get a tight electrical surge. usually passes with in 15 to 30 minutes.

July 31, 2023
A MyMSTeam Member

This was like somebody was flushing my whole body through with warm love, Almost an out of body experience and I felt like I couldn’t move, until a hour or fo at too short notice cof hours though that I was going to make it until morning

July 31, 2023

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