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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 5, 2023
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MyMSTeam

It sounds like you're going through a tough time. Zeposia (Ozanimod) is an FDA-approved medication for treating relapsing forms of multiple sclerosis (MS), including clinically isolated syndrome, relapsing-remitting disease, and active secondary progressive disease. It works by preventing white blood cells from leaving the Show Full Answer

It sounds like you're going through a tough time. Zeposia (Ozanimod) is an FDA-approved medication for treating relapsing forms of multiple sclerosis (MS), including clinically isolated syndrome, relapsing-remitting disease, and active secondary progressive disease. It works by preventing white blood cells from leaving the lymph nodes, reducing inflammation and protecting nerve cells from further damage.

Common side effects include:
- Upper respiratory infection
- Elevated liver enzymes
- Low or high blood pressure
- Urinary tract infection
- Back pain

Rare but serious side effects can include:
- Liver damage
- Decline in pulmonary function
- Decrease in heart rate
- Macular edema (fluid buildup in the retina)

If you are experiencing worsening symptoms, it's important to discuss this with your doctor to ensure your treatment plan is appropriate and to address any side effects you may be experiencing.

July 30, 2024
A MyMSTeam Member

@A MyMSTeam Member sorry for the diagnosis but look at the positive. You found this site and it will allow you to hear other's questions and provide you good info on MS to augment your other sources. MS often acts like a sine curve. Some days you're up and some you're down and both ways you're fine. Higher amounts of bad stress actually often increase symptoms. Try to keep an eye on your feelings. Maybe write them down. Definitely tell your neurologist. They can tell you what to do next but remember YOU WILL BE FINE. I know how do I know. Well, you've lived through diagnosis, you'll figure the rest out. Also, you may not have thought of this but just how long do you think you've had MS? Maybe for years when you ignored it and kept pushing on. In a way, nothing has changed other than you learning you have MS.

August 5, 2023
A MyMSTeam Member

I was recently diagnosed too and have just started on IV Rituxin, but like you…feel my symptoms are worse. Maybe because we have something to pin our symptoms on now??

August 5, 2023

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