Sorry took me so long to reply.
People don’t understand and I feel like I’m shouldn’t have to explain myself to anybody. They all can go mind their own business!

This u r always sick r not feeling well gets old real quick. I try to stay away from those people. I know how I feel and if they were in our body for ONE day they wouldn't b able to make it through. Stay around positive people. Our disease is with us all day everyday. Its not just going to go away because they don't want us to feel sick . We do have good days and bad days. Just as some people may have a good day at work r a bad day. But this is not something we can change. We CAN though try to stay as positive as possible but that just depends on how our body is that day. People have to understand that we don't want to feel sick . We don't want this disease!!

I tell then to try living my body and see how it feels. Otherwise F*** off.

I just say fuck em I know how I feel and it sucks

Hi Vicky. Yes people look 👀 at me think iv broken my leg or something because I’m in a wheelchair but look fine, really pisses me off also, and you try and explain your situation and then they ask when will you be able to walk again, because we saw you stand up before 🙈. It’s just they don’t understand , you’ll get a lot of those questions. X