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August 3
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Answer Summary

Members connected over the question of silent seizures in MS, with several sharing their own experiences including electrical sensations,... Read more

Members connected over the question of silent seizures in MS, with several sharing their own experiences including electrical sensations, brief staring spells, and confusion afterward, while one member described discovering a mini-stroke only through an MRI. Many shared helpful information, including a detailed explanation of how silent seizures relate to MS brain lesions, and the suggestion of using smart rings to help monitor episodes. A recurring theme was the comfort found in community sharing, with members noting that doctors often lack answers and that hearing others' experiences helps them know what to watch for.

A MyMSTeam Member

Just FYI

"Silent seizures (also called subclinical or electrographic seizures) are abnormal bursts of electrical activity in the brain that are detectable on EEG but produce no obvious outward clinical signs or symptoms, such as convulsions, staring spells, or altered awareness that others (or the person) would notice. 
In multiple sclerosis (MS), true epileptic seizures are uncommon but occur more often than in the general population—typically estimated at about 2–5% of people with MS versus roughly 1–3% overall. They are linked to cortical or juxtacortical lesions, inflammation, demyelination-related hyperexcitability, and greater overall disease burden (higher disability, progressive forms, longer duration, more brain atrophy). Focal seizures are the most frequent type. "

August 4
A MyMSTeam Member

@A MyMSTeam Member thanks for the information, I love when everyone shares their experiences with multiple sclerosis because it let's me know what to look out for and they usually discuss how to deal with it. Can't get that anywhere. I know a lot of doctors have no clue.

August 4
A MyMSTeam Member

Oh wow, Val! I've heard of many medical phenomena but not this! I'm not sure that i might have it though-I do daydream, did it a lot in my teens and 20s. There's nothing wrong with daydreaming (brain needs a break from the hustle and bustle of life anyway) but when it starts interfering with work, school, etc., it might be what you've experiencing and needs to be assessed.

August 6
A MyMSTeam Member

Its not painful its irritating while it lasts.

August 6
A MyMSTeam Member

Hey have any of you had issues taking breaths like as you try to take a breath it feels like your getting stabbed and cant take a full breath.

August 6

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