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I’ve only had one infusion (2 half doses for an initial full dose) and I’m now two and a half weeks away from my second infusion May 7. I have been feeling horrible since the end of March/beginning of April. I’ve been wondering if it is crap gap. I’m wondering if I should have chosen the monthly injection treatment instead. This is a horrible feeling.
What did you decide, @A MyMSTeam Member? Only if you care to share.
I remember that day of 1/2 dose 2 week apart…… i put my crutches down and was able to walk again. Then after a yr nothing new came up ;-) sleep was back to 8hr night. But just like other things slowly appeared/noticed till my first flare up that made me use crutches. Full overview —- 2019 was diagnosed with Primary Progressive MS, nothing i needed to talk/notice at 45 after 15yrs complaining to my doc of things didnt seem right, he blamed it on drinking/alcohol to much. One month after second Vax was when i couldnt walk ;-( then lost my job after 2 yrs ;-(
Now on my 5 Ocrevus injection, life sucks, the way i look at this started 15yrs back and the little things were all part of it, so now at a level of once a month ops in my pants, waiting for the Longterm disability to start has taken exactly 1yr denied first try in Feb and have a review next month.
2000 Vertigo might of started my MS
2019- diagnosed PPMS. No one knew
2021 - after Vax, couldnt walk Ocrevus started every 6 months rest of life.
2023 applied
2024 i hope cash comes
2015 first time couldnt hold bathroom, escalated to once a month OPs happens, depending on timing, diaper warn lots now ;-(
A look ahead that i have only learned as bad happens
The "crap gap" refers to periods of worsening symptoms that some people with multiple sclerosis (MS) experience between their intravenous infusions of disease-modifying therapies (DMTs). This phenomenon is also known as the wearing-off effect. It typically occurs when the effects of the last infusion begin to diminish Show Full Answer
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