Hello Roxanne. I'm very sorry you've had so many medical problems. It seems like they are all taking a toll on you. I too have bad migraines I see a neurologist for. They give me medications for the migraines. Your falling all the time could very well be MS. MS attacks the equilibrium part of the brain which is what happened to me. When I started falling over and over they put me on MS therapy Mayzent. Since you need an MS doctor to do that I googled St.Louis Medical Research Foundation like my own OMRF and I came up with St. Louis version of the MS center called BJC Medical Group MS Center for Innovations Care. They have 3 neurologists you can call for appointments. The website I www.bjcmedicalgroup.org. you can check this website out and read about their MS team. I hope this helps out 🙂.

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When I was diagnosed in 1995 I had a flare so bad my organs were shutting down. I could not walk without help I had a whole week of IV prednisone steroids pumped in my veins for an hour at a time gradually coming down in time till I started feeling a little better. I did not get feeling back into my legs and arms and face for 6 months. It took a year to truely heal. I had the pulling sensation like you are having with heavy feeling in my right arm till I'm sorry to say now. That has never gone away and probably will never go away because I have a lot of lesions in my brain. The left side of my face still tingles my hands still tingle. So there are some things that will get better and some things that won't. I also have tremors in my right hand really bad. That had never gone away just gotten a little better with MS therapy. It sounds like you are having an attack and you need IV steroids. It will only get worse and don't let a doctor tell you there is nothing wrong with you. You know you're body. I go to a place called OMRF I believe that stands for Oklahoma Medical Research Foundation that deals specifically in the care of patients who has MS. Go to a neurologist. Have them find you a MS doctor if they have one. I am sorry you are going through all this. It can be scary but once the ball is rolling I hope you get to feeling better. Good luck and best wishes.

Hi Nadine! Yes, the Medical Assistant left a text message on my patient portal that said my MRI looked great. What!?!?! This is from the first paragraph on the report about my brain, “ Postoperative changes of right parietal craniotomy with a small area of encephalomalacia involving the right parietal lobe including the post central gyrus. Small amount of pachymeningeal thickening and enhancement internal to the craniotomy defect. A few scattered T2/FLAIR hyperintensities within the white matter are in a nonspecific pattern.”
There are many other things with my back, such as DDD, DJD, osteoarthritis, bone spurs, a “new area of foraminal stenosis, “a small right extraforaminal disc protrusion abuts the exited right L4 nerve root in the right extraforaminal location”, and “a sclerotic lesion within the L4 vertebral body most likely represents a bone island.” There is also dilation of my common bile duct and pancreatic duct that they recommended ultrasound follow-up. I don’t know how that is “great” without follow-up. I wrote back so I’d have documentation and requested a lumbar puncture. I wrote to my GI doctor requesting the recommended ultrasound. I didn’t like what I saw when I looked up ENCEPHALOMALACIA, although I was told via text it’s from the brain tumor removal without further explanation. The T2flair hyperintensities in my white matter are still there on my brain MRI. Otherwise, it’s great! I’m going to get my lumbar puncture puncture and keep trying to get into Mayo or other reputable clinic. Great news…this morning for about 30 minutes I had no pain! None! It was wonderful and gave me hope! ❤️😊 Thanks for asking. You are so sweet.

Hello Roxanne8. Thank you for the hug. Very kind if you 🙂.

Hi Darren! Thanks for your response. I’m so glad your flare is not getting worse. Always a good thing.