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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Hemet, CA

I was very recently diagnosed with MS, my neurologist is having me start Tysarbi later this month. From what I read Tysarbi is for relapsing forms of MS, when I asked my doctor what form I had he said he didn’t know. Why would he have me take medication for a form of MS he doesn’t know I have? All he said was “you’re starting it because you shouldn’t have lesions on your spine yet, but you do” no further explanation.. I feel rather lost. Any answers will be very helpful. Thank you :)

July 7, 2024
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A MyMSTeam Member

Lesions on your spinal cord are a concern as they indicate the disease is aggressive and Tysarbi is a highly effective therapy. Lesions on the spinal cord can lead to more disability. Better your physician is taking an aggressive approach to get your MS under control early on and it can always be changed once the disease is under control.

July 8, 2024
A MyMSTeam Member

Thank you! I did not know that lesions on the spinal cord meant that.

July 8, 2024
A MyMSTeam Member

M.S. is the hardest disease to diagnose. At least he's taking action. If your uncertain about the meds, read up on it. Look for the Physicians Deck Reference. And contact the NMSS for information about other DMT's.
I don't know how you are doing physically, but the idea is to keep you on your feet. God Bless Stay Strong

July 8, 2024
MyMSTeam

The path to a diagnosis of multiple sclerosis (MS) can be long and uncertain. For some people, years may elapse between experiencing the first symptoms and receiving a definitive MS diagnosis. The process involves:

- Initial Symptoms: Experiencing the first symptoms
- Diagnostic Tests: Undergoing various tests like MRI, Show Full Answer

The path to a diagnosis of multiple sclerosis (MS) can be long and uncertain. For some people, years may elapse between experiencing the first symptoms and receiving a definitive MS diagnosis. The process involves:

- Initial Symptoms: Experiencing the first symptoms.
- Diagnostic Tests: Undergoing various tests like MRI, evoked potential tests, and lumbar puncture.
- Observation Period: Waiting to see if the disease flares or progresses after a first episode.

This process can be complicated by the presence of other conditions, making it difficult for neurologists to identify MS.

July 7, 2024
A MyMSTeam Member

My neurologist is studying spinal cord lesions and told me that my spinal cord lesions are likely what led to my SPMS transition.

July 8, 2024

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