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A MyMSTeam Member asked a question 💭
Huntington Park, CA

I’m sad I can’t control my bathroom breaks.

July 24, 2024
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A MyMSTeam Member

Whenever I feel sad about things that MS has forced me to change, I let myself mourn about what's gone for a short while before trying to change things to make my live better. I had to transition to a wheelchair. I mourned briefly then tried to change my mind set to acceptance. Miss timing bathroom breaks can be very embarrassing. I know that if I urinate on myself when I've just made it to the toilet one more time, darn. I tried to turn this issue into a game of trying to change what I eat and drink to limit emergency situations and to make myself at least go into the bathroom on a schedule, like every 3 hours. I never thought I'd ever need to take these steps but they are better than a just miss. I'm not sad though.

July 24, 2024
A MyMSTeam Member

A lot of the things I can deal with. I have trouble giving up control of my kitchen when I am not able to cook and my husband does. Same with hanging the clothes out on the line. I've been hanging them the same way for a long time, he hangs them completely different. I have to remind myself that how doesn't matter, they are going to get dry.

July 24, 2024
A MyMSTeam Member

I understand. I've dealt with some sadness and grief over not being shot to manage and control what's going on in my body due to MS. It can be very frustrating at times. But when I remember to surrender to it, then I can roll with the punches. Sometimes, the hardest part of having MS is dealing with the unpredictability of it all.

July 24, 2024
MyMSTeam

Living with multiple sclerosis (MS) often brings a sense of loss of control over one's health and body. Many people with MS feel betrayed by their bodies and struggle with the desire to regain control. Strategies to cope with this include:

- Guided Imagery: Visualizing letting go of control
- Trusting Others: Opening up Show Full Answer

Living with multiple sclerosis (MS) often brings a sense of loss of control over one's health and body. Many people with MS feel betrayed by their bodies and struggle with the desire to regain control. Strategies to cope with this include:

- Guided Imagery: Visualizing letting go of control.
- Trusting Others: Opening up and relying on support from others.
- Organizing/Cleaning: Finding control in manageable tasks.
- Seeking Support: Reaching out to others who understand.

It's important to focus on what can be controlled and practice self-care.

July 24, 2024

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